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Old November 30th, 2009, 03:11 PM   #241
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11/30:
12:30pm - Jon is looking better today and acting more relaxed. This morning, the nurses and Lori said he pointed to his beard and said he wanted it to go away. He again said he was "full" after he received his lunch via feeding tube. He's been pointing more with his right hand to people that are talking to him: he did that with Lori and me this afternoon.


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Old November 30th, 2009, 03:44 PM   #242
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What great news to end the day on. Thanks for posting Kim.
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Old December 1st, 2009, 08:44 AM   #243
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Wish I actually got to spend time in Dallas, but was just waiting for an hour at the airport. Great news on the recovery. I also had to laugh at the cartoon thing.
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Old December 1st, 2009, 05:00 PM   #244
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Quote:
8:00pm - Jon said alot of clear words this evening, some I've only heard for the first time:

"Owl" - I was wearing a shirt with a drawing with an owl and asked him if he could tell me what animal he saw

"Built to Spill" - I asked him what kind of music he would like to listen to on my ipod

"My head" - When I asked him where he was feeling pain

"Feels good" - When I rubbed his hair after he said his head hurt

"Football" - When Lori handed him one of the small NERF footballs he squeezes on to

"I don't know" - When he doesn't have an answer

"What's that" - When he doesn't know

"Whatcha doing" - When he's asking how you are

"I love you" - sometimes on his own or in reply

"Why are you crying" - When I cry

"I can't" - When we ask him to move his left hand

"OK" - This interchanges with "Yeah"

I've also seen him nod his head in response to a yes. Also noticed that he has started moving his left leg slightly (he hasn't before) and giving a thumbs up sign with his right hand. He became a little more agitated tonight and upset over his uncomfortableness. He will receive a scan over his entire body tomorrow to determine and locate the infection that is causing his high temperature.

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Quote:
Originally Posted by Lori Broom
jon is good today, very low fever. he does have an infection in his lungs which he is on antibiotics for. tommorow they are doing a test that scans his whole body for infections. he did really good in therapy today. slow but positive progress. keep up the prayers and good thoughts...lol
Quote:
Originally Posted by Lori Broom
jon is really good today. he is talking alot and answering questions correctly. he even talked to his grandma amy on the phone and called her by name. she was soooo excited. seems more alert today (no fever). they took off the right cast on his ankle to check the sore on it and it was healing good. so now he has ...another blank cast on, need to come sign it. they will finish his ct scan tomorrow. they put the radiation stuff in today and test tomorrow. ...lol
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Old December 1st, 2009, 08:55 PM   #245
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Old December 1st, 2009, 09:20 PM   #246
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Wow is all I can say right now. I have this vision that some day in the not to distant future we're going to be able to have web cam talks with Jon.
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Old December 1st, 2009, 10:14 PM   #247
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Keep it going Jon. Good news!
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Old December 1st, 2009, 10:47 PM   #248
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Such good news of late. Good work and support from all the folks involved.

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Old December 2nd, 2009, 10:56 AM   #249
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Thumbs up

Quote:
Originally Posted by OldGuy View Post
Wow is all I can say right now. I have this vision that some day in the not to distant future we're going to be able to have web cam talks with Jon.
Don, I think that`s a very real possibility---a lot sooner than we think. Checked in with my sister and she feels the "Owl recognition" is a benchmark--a very good sign. She is reasonably sure that his therapists are using picture cards for object recognition. He will, I would expect, be reading magazines very soon. When he does that---she suggests magazines with funny cartoons, etc. The idea is to get him laughing---another benchmark. Sat. AM cartoons on the TV are also good.
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Old December 2nd, 2009, 04:06 PM   #250
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Quote:
12/2
12:30 pm-Jon's team of doctors, nurses, & therapists held their conference with Lori today. The whole team was in good spirits and very positive about his current state and the progress he has made. Jon can now begin receiving little amounts of water and ice chips...which he has been requesting frequently! His discharge date from Baylor to his next rehabilitation is set for December 22nd. Lori has an appointment to visit Pate Rehabilitation tomorrow, but the family has not yet decided where Jon will be transferred to next.

Pate Rehab
http://www.paterehab.com/

via:Nadine
Quote:
Originally Posted by Nadine Diaz
I heard Dr. Carlisle and 12 other of your doctor's, nurses, and therapists state your progress during your conference today. I think it's safe to say that EVERYONE is amazed. We all see it and know it, but it's good to hear your official "medical" progress and their professional opinions, as well. Just more reassurance... for you & everyone surrouding you. Although, you seemed to be snoozing through everyone's "hoorahs!" for you. Looks like you can finally start getting those ice chips and water you've been wanting now!!! Ayden and I love you with all of our heart!!!!
Quote:
Originally Posted by Lori Broom
confrence went well. they all are good reports. just need to get you to open your mouth more. you are doing so good. i have on my tmgp sweatshirt and he read it out loud in therapy. pretty cool. hasn't been running a fever so thats good. talk with you soon...lol
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Old December 3rd, 2009, 06:01 PM   #251
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Quote:
Originally Posted by Lori Broom
jon is sound asleep with his new motorcycle blanket on. he had a pretty big day. he works so hard in therapy and is doing good. he sure wants his trach out. he is always asking to take it off and points at it. probly very uncomfortable. he's ready to go home too. i tell him soon i promise...lol
Quote:
Originally Posted by Lori Broom
it is cold today but sunny. david is coming up tomorrow for the weekend, yeah. jon is getting his pt therapy right now. they put a cast on his left arm and will change it on monday to get the arm lowerd. he is tolerating it pretty good. there is alot of writing room on the casts now, he has 3.
Quote:
12/3
11:00 am-Jon just returned from the medical side of Baylor where he received the procedure that scans his whole body to locate/determine where his infection is coming from. The occupational therapist wrapped and taped a pillow around Jon's left arm as a gradual aide to his spasticity. This is just temporary support before they decide to put on splints which will help his arm become less rigid and more flexible.
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Old December 4th, 2009, 06:07 PM   #252
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Quote:
Originally Posted by Lori Broom
jon is doing good. he has another hour of therapy until he's done for the day. he is saying more and more each day. when darin showed him his class champion tee-shirt he said podeium. that was pretty cool. his arm hurts from the new cast but he's tolerating it. keeps smashing his left toes with his right cast, ouch. talk to ya soon...lol
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Old December 6th, 2009, 06:16 PM   #253
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Quote:
Originally Posted by Lori Broom
jon looks great today. he is wide awake and talkative this morning. monday he will have his eyes checked by a specialist to check for tears in the retna. he is wanting to go to the mall today, sorry jon we have to wait. he's getting better if he's ready to go shopping...lol
Quote:
Originally Posted by Lori Broom
here is jon's photos before and after shaving. he looks so different. he told his dad and the nurse to go bug someone else while shaving. it was pretty funny. he's looking good and is really wanting to go home.
Quote:
Originally Posted by Lori Broom
hey, he's starting on the road to recovery now. everyday is more. he answers very well and is starting to move his mouth alot better. he is sipping water off a spoon and ice chips. tomorrow he see's an eye specialist to see if he has a tear in the retna. they also will change his right arm cast and go lower with a new one.
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Old December 7th, 2009, 09:56 PM   #254
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Keep the updates coming! So happy to hear he's doing better.
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Old December 8th, 2009, 01:59 AM   #255
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Good to hear he is improving.
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Old December 8th, 2009, 04:29 PM   #256
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Quote:
Originally Posted by Lori Broom
hi everybody. jon is doing fantastic.he doesn't have a tear in the retna but there is a pocket. he goes back in twon weeks, it should heaql on it's own. he is so aware of everything. sometimes his short term memory is not good but other stuff is great. i'm so proud of him. he'll be back in no time..lol
Quote:
12/7
sorry, it's been a few days. jon's retna isn't torn but does have a pocket behind it. should heal on it's own. they put the second cast on his right arm to lower it. works hard in therapy because he wants to go home. soon jon soon
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Old December 10th, 2009, 09:19 AM   #257
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So glad to read about Jon's progress!!
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Old December 12th, 2009, 02:20 PM   #258
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More wall posts, all courtesy of Lori Broom and Nadine Diaz

Quote:
Originally Posted by Nadine Diaz
Please keep in mind that this can also be a sensitive time for the family and updates may be limited due to a patient's confidential medical information or simply due to emotional stresses. I know that udates were prominent in the past but Jon's privacy should also be respected. This can be a time when TBI patients ex...press a lot of self-consciousness because of their current state so if the family feels the need to not update 1700 people on what Jon today then hopefully supporters will understand that. Thanks. You're doing great Jon! Thanks for helping me make my grocery list today.
Quote:
Originally Posted by Lori Broom
jon is doing absolutely fantastic. no fevers, learning more everyday, speech is getting more coherent and just all around great. we're so proud of him! went to visit the next stop of this journey today. it's very nice and i think jon will like it. it's very structured but outside of a hospital atmosphere. will let you know later....
Quote:
Originally Posted by Lori Broom
hey ya'll, jon is getting ready to go back to therapy. his break is over. their going to change the right cast tomorrow and maybe start on the left friday. he tried taking some steps this morning, very encouraging.
Quote:
Originally Posted by Nadine Diaz
You'll be on here updating your own status in no time after what I saw today! You helped Ayden on my new laptop and told me that you had a "Mac", matter of factly. When Ayden was manuevering around his favorite dirt bike game website, you assisted by telling him to go to the home page and even reached over to type. ...I hope you enjoyed your time with our son today. You were calm and serene and looked over him why he laid next to you and made "vroom vroom" sounds and raced motorcycles. You will be home in no time...
Quote:
Originally Posted by Lori Broom
jon is great this morning. he is over getting a test done to see how his swallowing is. once this is good he can get the trach out. i got here about 6:30 and he was already awake, said he was glad to see me...he had the flu. he doesn't but was glad mom was here to take care of him. funny...
Quote:
Originally Posted by Lori Broom
jonathan is doing good today, he got to eat his lunch. they fed him mashed potatoes, mushed meat, geen beans and pears. it was slow going but he did great. he said it tasted pretty good. i have on my cmra sweatshirt today and he keeps saying central motorcycle racing association. he knew what it stands for! he al...so took some steps on the treadmill today, this was awesome to watch. he's worn out and sound asleep now.
Quote:
Originally Posted by Lori Broom
kinda rainy today. jon is still a little confused with the new room but getting better. he wanted to watch sat. morn. cartoons. he'll be getting in his chair soon so i can take him down stairs. he likes the big christmas tree in the lobby, too cold to take him outside today, maybe tomorrow.
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Old December 12th, 2009, 03:31 PM   #259
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This all sounds like great news. Keep wearing different T Shirts so that he can process--also Sat. Cartoons are great. When he gets that trach. tube out, his mood will take a noticable upswing.
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Old December 12th, 2009, 04:34 PM   #260
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As read the post today all I could think of was "thank God and all those who have been praying for Jon". It is truly a special thing to watch happen. Nuf said.
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Old December 12th, 2009, 09:20 PM   #261
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Just imagine where he will be in another 90 days. Progress is no longer slow going, but leaps and bounds. Hope to have you back here soon John. You have been missed. Keep up the good work.
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Old December 15th, 2009, 09:30 AM   #262
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wow great progress. puts a lump in my throat when i think about what Jon, his family and friends must be going through, but he is progressing and that is terrific!
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Old December 15th, 2009, 05:51 PM   #263
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Quote:
Originally Posted by Lori Broom
jon woke up from his nap much better. his fever is back down and he is much calmer. jon's friend steve is running a marathon tomorrow, hope he kicks ass.........
Quote:
Originally Posted by Lori Broom
good morning, not much to tell t..his morning. jon is doing the same but not as agitated as yesterday. little fever today but their on top of it. the x-rays of the lungs yesterday looked good. sure wish he would stop getting fevers. let ya'll know more later today
Sun at 12:01pm
Quote:
Originally Posted by Lori Broom
serenity====God grant me serenity to accept the things i cannot change, courage to change the things i can and wisdom to know the difference Amen
Sun at 4:59pm
Quote:
Originally Posted by Lori Broom
good morning, jon is having a good day, he's sleepy though. they will be coming to measure him for a wheel chair today. he may need to use it for awhile. he will be eating his lunch again today...cool. not sure he will have his trach out before we go to the new place-he has to be eating more. hopefully it gets taken out, one less whole in him...
Yesterday at 1:05pm
Quote:
Originally Posted by Lori Broom
jon is doing great. he will be off his antibiotics i think tomorrow, so then he won't be pulling out his iv and handing it to me. he is working hard in therapy, it really wears him out. please come visit, he loves seeing his freinds...
5 hours ago
Quote:
12/15
jon will be off the antibiotics tomorrow. no more pulling out the iv. working hard in therapy, standing everyday with help. he will need to be in a chair for awhile due to the ho in his knees. he cannot bend them. this will need surgery in about a year. mentally he is confused but handling this very well. finally used to the new room...


via; lori
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Old December 16th, 2009, 02:07 PM   #264
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Looks like great progress----will keep the prayers coming.
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Old December 16th, 2009, 04:46 PM   #265
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Quote:
Originally Posted by Lori Broom
yeah, jon got his trach taken out today. he says he feels so much better. he also will be getting the iv out today. been getting so much info before the move next week my head is spinning. i am so proud of him and how hard he is working...
2 hours ago
Great news!
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Old December 17th, 2009, 08:49 AM   #266
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That is great news. Seems like he is making lots of progress each day. Its pretty amazing how fast he is progressing now.

We knew he had it in him
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Old December 17th, 2009, 05:48 PM   #267
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Quote:
Originally Posted by Lori Broom
jon is good today, anxiuos about the move next week. he is very coherent today. talking up a storm. a lady from cns was here this morning watching his rehab therapist.. this made me more at ease about the move. will let everyone know soon....
3 hours ago
Quote:
12/17


jon got the trach taken out yesterday which means he is breathing and swallowing well. they are also done with the antibiotics so the i.v. is also out. the only things left is the feeding tube. he is eating lunch but not eating enough to gain weight. hopefully this won't be much longer.
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Old December 18th, 2009, 12:09 AM   #268
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Thank God for those speedy recovery...Get well bro! Our prayers for you from your brothers in Ninjette here in the Philippines!

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Old December 18th, 2009, 06:02 PM   #269
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Quote:
Nadine Diaz You count change better than me!!!! Watching your therapy sessions reminds me of watching Ayden succeed at something. My throat swells with pride and happiness! I also love that even when you are having a not so good day, you are still the sweetest man I have ever known. I can't even tell people your progress on a day ...to day basis anymore because everyday you amaze us. Your progression is outstanding. I know in my heart that you will be serene and happy in such a short time. You are almost there, almost there, bud. Ayden and I love you! See you tomorrow.
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18 hours ago

Quote:
Lori Broom hello, jonathan is still progressing. they put a cast on his right arm today to start bringing it down. not sure if they will be re=casting the left arm. bir had a christmas party today for the patients. it was really nice. jon seemed to enjoy it but then he got upset so i brought him back up nto the room. he has... been having a hard time realizing he cannot go x-mas shopping etc. doing my best to let him know he can't. will let you know more tomorrow about the move on tuesday...
See More
about an hour ago
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Old December 19th, 2009, 06:29 PM   #270
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Quote:
Originally Posted by Lori Broom
what a beautiful day. nice here in dallas. jon is doing great, talking away. majority of it makes sense now. i'm so proud of him...
Quote:
Jon is at a functioning Cognitive Level VI;
http://www.rancho.org/patient_educat..._cognition.pdf

Person is able to follow increasingly difficult commands. Although they may remain confused about the events because of continued memory problems, they generally do not confabulate or make-up answers. Instead they will respond with "I don't know". Memory for events and information learned before the injury is returning although memory for recent events remain poor. The person is able to work toward a desired goal with less step-by-step indtructions.

They are no longer agitated or combative although they may continue to voice extreme complaints to even minor discomfort. The person shows improving but still impaired attention skills. They may know where they are, the date and information about themselves. They are often beginning to understand their injuries and deficits, but still do not have full awareness and may attempt unsafe things. They may be very fixated on returning home, work or school.

12/19

jonathan is doing good. he works really hard in therapy to take steps on his own. this is very painful for him due to the HO in his knees and thigh. he is now at a cognitive level 6. he will be moving to centre for neuro skills in irving on tuesday. i will post the address and directions monday. they do require a photo id and your name on a list to visit at the apartments. very safe and secure out there.

via; lori
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Old December 20th, 2009, 07:40 AM   #271
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Kim, Thanks for keeping the ninjette family in the loop. It is very encouraging that Jon has moved to Level VI. If my memory serves me right, he should progress at a good rate until he reaches Level VIII. At that point, patients tend to plateau for a period---this is where a person specializing in helping Jon regain his cognitive skills comes in. From there on, things should go well. Jon is very fortunate to have a caring and supportive family in his corner. From reading this thread from the beginning to now---his wife and children have played a pivotal role in his progress. My opinion is that Jon`s supportive family and the support of his friends is as important in his recovery as his top notch medical team. As the Level of Cognition numbers go up, support from family and friends will also increase in importance. Level VI is a great Christmas present, for sure.
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Old December 20th, 2009, 07:53 AM   #272
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Hang in there, Big Guy! You bring a lot to the community, and my hopes and prayers are with you!
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Old December 20th, 2009, 06:17 PM   #273
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Lets hope Christmas brings Jon and his family continued improvement.
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Old December 20th, 2009, 06:59 PM   #274
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Lori Broom jon is well, david and dusty are here. today is david's birthday. jon was glad to see them. he is talking to his freind rocky on the phone. will give you updates this afternoon...
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Lori Broom today was great. david and dusty were here and nadine brought ayden up to see papa for his birthday. steve and carl came by and tyler and beth w/kids came over too. very busy here today. jon did pretty good but decided there was to many people. he got a bit over stimulated but calmed down easy. he is getting x-r...ays and a doppler on his arm right now. will post tomorrow what they say. talk with ya'll soon
2 hours ago
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2/20

jon is getting x-rays on his arm right now. they are checking for a blood clot. not sure what the bump is from but will know shortly. today is jon's dads birthday so david and dusty came up to be with jon. they will be back christmas. will report on the x-rays tomorrow.

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Old December 21st, 2009, 10:08 AM   #275
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I wonder how long until he starts getting back on line. At the price of some of the verbal input software it might be a good thing for him http://www.nuance.com/naturallyspeaking/ Unfortunately it doesn't look like it runs on a Mac and I'm not to sure that the included speech to text engine in the Macs is really up to the task of surfing and typing. I know they have something, but not sure how well it works. They do list an iphone app, he might have one of those he could use.
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Old December 24th, 2009, 06:33 PM   #276
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Happy Holidays John to you and yours. Cant wait to see you back here.
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Old December 24th, 2009, 07:46 PM   #277
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Jon and Lori and kids, A Merry Christmas to you. I realize these are not the best times. You are always in my prayers. Keep up the good progress. I think you will make it through this one. Best Wishes, Alex
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Old December 24th, 2009, 09:05 PM   #278
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Best wishes to Jon, his family and friends for a Merry Christmas in this difficult time. Prayers go out for a continued recovery.
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Old December 24th, 2009, 10:08 PM   #279
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Heartbreaking story of recovery. Makes me think.
Get well soon Jon, best wishes to you and your family from someone you've never met or heard of. Be strong man. You have a lot of people who care for you!
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Old January 1st, 2010, 07:16 AM   #280
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I know its the holidays, but its been over a week without an update. What gives??
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